HOUSE_OVERSIGHT_015492.jpg
2.32 MB
Extraction Summary
5
People
8
Organizations
2
Locations
1
Events
3
Relationships
5
Quotes
Document Information
Type:
Article / educational material (evidence file)
File Size:
2.32 MB
Summary
This document appears to be a page from an educational publication (Nautilus Education) discussing 'orphan diseases' (rare diseases). It contrasts the struggles of a modest family (the Topics) with the efforts of Michele Wrubel, an affluent Connecticut woman with calpainopathy whose husband, Lee Wrubel, is a venture capitalist in the medical field. The document includes a House Oversight stamp (HOUSE_OVERSIGHT_015492), indicating it was collected as evidence, potentially due to the connection of the Wrubels to the broader investigation.
People (5)
| Name | Role | Context |
|---|---|---|
| Marijana Topic | Parent/Subject |
Runs a daycare center, mother of children with rare disease.
|
| Niko Topic | Parent/Subject |
Works for a lumber company, father of children with rare disease.
|
| Michele Wrubel | Subject/Advocate |
49-year-old stay-at-home parent from Connecticut with calpainopathy; described as affluent and well-connected crusade...
|
| Lee Wrubel | Spouse/Professional |
Michele's husband; holds MD/MPH from Tufts and MBA from Columbia; venture capitalist in the medical field.
|
| Isabel Jordan | Chair |
Chair of the Rare Disease Foundation.
|
Timeline (1 events)
Locations (2)
| Location | Context |
|---|---|
Relationships (3)
Wrubel’s husband, Lee
her husband and the childrens’ father, Niko
For the Topics, Wrubel may be their best hope.
Key Quotes (5)
"“I’m definitely a fighter, and will try and walk for as long as I can.”"Source
HOUSE_OVERSIGHT_015492.jpg
Quote #1
"“Without hope, there’s no life.”"Source
HOUSE_OVERSIGHT_015492.jpg
Quote #2
"“To make a difference in this disease, you need money and meetings,” she says. “Researchers are not going to study a disease unless there’s money behind it to fund the research.”"Source
HOUSE_OVERSIGHT_015492.jpg
Quote #3
"“Families have to advocate”"Source
HOUSE_OVERSIGHT_015492.jpg
Quote #4
"“If you don’t know what you’re looking for, they don’t know what to tell you or how to help you”"Source
HOUSE_OVERSIGHT_015492.jpg
Quote #5
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