HOUSE_OVERSIGHT_015495.jpg
2.52 MB
Extraction Summary
6
People
7
Organizations
3
Locations
3
Events
3
Relationships
4
Quotes
Document Information
Type:
Magazine article / government oversight document
File Size:
2.52 MB
Summary
This document is a page from Nautilus magazine (labeled HOUSE_OVERSIGHT_015495) discussing the efforts of the Coalition to Cure Calpain 3, a nonprofit founded by Wrubel in 2010 to fund research for a rare muscular dystrophy. It details the scientific work of researchers Spencer and Louis Kunkel, including a $260,000 grant provided to Spencer's lab, and discusses the pharmaceutical industry's interest in orphan diseases. While included in a House Oversight document dump presumably related to Epstein (who often funded scientific research), the text itself contains no direct mention of Jeffrey Epstein or Ghislaine Maxwell.
People (6)
| Name | Role | Context |
|---|---|---|
| Wrubel | Founder |
Formed the nonprofit Coalition to Cure Calpain 3 in 2010; raising funds for research.
|
| Spencer | Researcher |
Scientist studying calpainopathy; received grant from Wrubel's coalition.
|
| Louis Kunkel | Professor |
Professor of genetics and pediatrics at Boston Children's Hospital; funded by Wrubel.
|
| Lee | Spouse |
Wrubel's husband; comments on the pharmaceutical business model.
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| Ivana | Patient/Advocate |
Connected with Wrubel via Facebook; inspired by Wrubel's work.
|
| Jude Isabella | Author |
Science writer based in Victoria, British Columbia; author of the article.
|
Organizations (7)
| Name | Type | Context |
|---|---|---|
| Coalition to Cure Calpain 3 |
Nonprofit formed by Wrubel in 2010.
|
|
| Boston Children's Hospital |
Institution where Louis Kunkel works.
|
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| United States Food and Drug Administration |
Mentioned regarding approved compounds library.
|
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| Cydan Development |
Venture-capital backed orphan drug developer.
|
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| Thomson Reuters |
Conducted a 2012 study on orphan drugs.
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| Nautilus |
Publication source.
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|
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Platform used for networking among patients.
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Locations (3)
| Location | Context |
|---|---|
|
Location of Boston Children's Hospital.
|
|
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Location of an upcoming fall conference.
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Location of the author, Jude Isabella.
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Key Quotes (4)
"Muscle studies have been underfunded forever and certainly a rare disease like 2a especially underfunded."Source
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Quote #1
"I think this is going to be the easiest muscular dystrophy to cure."Source
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Quote #2
"Many pharmaceutical companies see treating orphan diseases as a way to increase profits."Source
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Quote #3
"Definitely not someone who is going to sit around and wait for something to happen."Source
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Quote #4
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